When parents are in the NICU, it is a roller coaster ride day in and day out. There will be good days that the baby is doing well and then there are the days when the baby’s life is in danger because the baby’s condition has taken a step backward. Many times it is infections that will cause the baby’s breathing needs to increase so they have to remain on life support longer, other times it is surgery, making the baby’s progress unknown. It is a day to day management of the baby’s needs. This type of stress takes its toll on a parent where they lose hope on those days and they do not have anywhere to turn. Family and friends are there for the parents, but after a while, the support becomes less and less and the parents only have each other to hold on to. When both parents have lost hope and do not have a place to turn, it becomes daunting and unbearable.
As a parent of a preemie myself, I had those days and each and every time when my husband and I went out to our car we would walk saddened to the car in the long walk through the parking garage wondering what will become of our baby and how will we cope. However on those days without fail, every time we got in our car to drive home, we would listen to Z88.3 a contemporary Christian radio station that offers support to listeners through positive radio music and the song that each and every time came on was “The Voice of Truth.” The song speaks about having faith to stand before a giant and the strength to carry on. The song gives encouragement that any trial we face God has the last say. We took that song to heart and each time we received bad news remembered it at the very moment the bad news came and we would listen to it on the radio when it came on. We had nothing else but our faith to hold on to.
Regardless of what your religious beliefs are, this song will encourage you through the difficult times.
It was such a powerful song, that it was performed at our charity gala twice by two different performers to give hope and encouragement to the preemie parents attending that year.
Alayne Gatto shares a brief moment of what life is like in the NICU. It is a stressor to a new mom regardless if that is her first baby or her second, or third to be admitted to the hospital preterm and have a baby born early and whisked away to the neonatal intensive care unit.
Many studies have been done to show that the stress involved in the parents during that time has caused depression, physical illness with high blood pressure, anxiety, and more.
The Gift of Life strives to be there for these parents through support from mentors that have been in that situation before. They support the families, rejoice, and celebrate the moments with them. During a crisis, they are there to bring that needed comfort to get them through that difficult time.
This November 17th is World Prematurity Day. Wear your purple to raise awareness about premature birth. Post your pictures and videos on our event page https://www.facebook.com/events/523897121371385/
Every year Rosie and Marcus Moore founders of The Gift of Life, take November 17 World Prematurity Day as a day to remember their little miracle Kaleb that was born 13 weeks early at 27 weeks, weighing only 1lb 10oz and 12 inches long. They remember the almost 6 months that he lived in the Neonatal Intensive Care Unit (NICU) growing, having medical issues, and hanging on to every breath, wondering if it would be his last one. They cried, they prayed, and lost sleep for months and even years after he went home. At birth, he was only given a 5% chance of survival, while Rosie, hung on for life as well after the emergency c-section. Marcus was at a loss with his only child possibly not making it, the love of his life in serious condition following the surgery. He clung to God, but also to the song He’s My Son by Mark Schultz. He prayed those words, he shouted, God can you hear me. Somedays there was silence and the emotions overcame him because he could not stand another day going to see his son suffering.
As Rosie got better, his spirits were lifted through her encouragement, that God would not provide him a son to take him away. He grew stronger each day until the day he finally came home. This past September, The Gift of Life held their 5th annual charity gala and Rosie decided that she would put together an assimilation of what life in the NICU was like for parents. Marcus and Tisha were to perform in the assimilation together, but due to the unexpected hurricane Tisha, Mrs. Virginia International, mother of preemies herself, was not able to get out to Orlando. But because Orlando has a huge heart for charity, Karen Shriner, professional actress, and singer stepped into the role 2 days before the event and evoked emotion along with Marcus from the audience.
See some of the remarks from the guests:
“I was overtaken with emotion, I could not stop crying.”
” I already knew the story because I went through it with Marcus and Rosie, but seeing the show tonight, brought me back to that moment and I cried like a baby.”
“I never knew that parents endured these emotions.”
“I was scheduled to work and did not know that my job today was involving an event for premature babies, it brought me back to when my daughter was born 14 yrs ago, I could not stop crying and I am supposed to be working the event.”
The list went on of people sharing their emotions.
The assimilation started with founder Rosie Moore saying:
“Imagine your baby being born 13 weeks early, weighing 1lb 10oz and fitting in the palm of your hand.”
From there, The NICU awareness video played:
Then the assimilation with Karen Shriner and Marcus Moore started to the song He’s My Son” by Mark Schultz. It showed the daily fears, tears, struggles, emotions of two parents while their baby was in the NICU. That is the story of Rosie and Marcus. Florida Hospital partnered with The Gift of Life to sponsor the Isolette similar to the one little Kaleb was in when he stayed in the NICU.
Many times Rosie would be alone in the room not wanting to go home while Marcus would go to the chapel or on the other side of the room praying as Rosie hunched over the isolette still healing from her surgery, weary from lack of sleep, and hurting to see her son lying in an isolette connected to wires, IV’s, breathing machines, coding frequently setting off alarms. In this assimilation that is what Karen and Marcus are doing assimilating those moments in the NICU.
They share this story with you today not so that you can feel sorry for them or any other preemie parent but so that they can raise awareness of what is happening with preemie parents when they are in the NICU. These emotions are real and painful.
The Gift of Life needs your help, they can’t do this alone, it takes a village of volunteers, board members, and financial support to reach as many families as they can.
Visit them on their website www.thegiftoflife27.org for more information or to receive support
Thank you to our video sponsor Dan Sweeney of Megapixel Pro
I gave birth to Kaleb, but he birthed me into God’s purpose. Did you ever ask yourself what would my life look like if it turned out a different way? Many times I asked myself that question as my son was fighting for his life with a 5% chance of survival at birth. Kaleb was born prematurely 13 weeks early, weighing 1lb 10 oz, 12 inches long and fitting in the palm of my hand. That is not a story that you wish to hear from anyone. But day in and day out 1 in 10 babies are born prematurely. Some for health reasons on the part of the mother, the baby’s health, and some it is unknown. We struggle as parents wondering what we did wrong, how could we have avoided delivering early until we are blaming ourselves for it. Today I am here to tell you as a surviving mother of a premature baby that premature birth happens, it is not prejudiced. Premature birth affects all races, socioeconomic status, ages, and women all over the world.
When my son was born, I wanted to hide and not talk to anyone, but a wise woman pulled me out of my isolation and had me sharing my story before I could blink. She was the vehicle to make me see premature birth in a different light; a light that would make me care about others even though I was hurting. She encouraged me to go on and live with my son because he was a miracle.
Today he is a happy little boy. He is 9 years old and just full of life. The road here was not easy, but the journey to going home from the NICU was priceless. Join me as we wish our happy little miracle, Kaleb, a Happy Birthday!
In the words of director Andrew Stanton, “make me care.” By saying this to you, it is simple, a great story will make you care. Here at The Gift of Life, we have many stories, some that will make you laugh, some that will make you cry, and some that will make you feel good that you listened to it. These stories are what bring donations, volunteers, and sponsors because every day it is something new and your help can make a difference!
Contact us today to hear someone’s story and get involved with The Gift of Life
Every year The Gift of Life delivers Love Bears and Santa Hats to the Neonatal Intensive Care Units (NICU). This year was no different. What is the story behind this passion that volunteers have to knit and crochet bears and hats? Love is the common denominator. If you can think of what it would be like to have a baby earlier than expected, lying in an incubator, fighting for his/her life, and being told that you cannot bring your baby home, this news is enough to put any parent into depression. Although we cannot change the circumstances, our volunteers get the meaning of the work that they do and with their talents bring a smile to the parents whose babies will not be going home. This year Florida Hospital and Winnie Palmer Hospital received Santa Hats. The families at Florida Hospital and families with babies in the Winnie Palmer NICU staying at the Ronald Mc Donald House also received Love Bears made by the senior citizens of The Good Samaritan Village, If we can bring a smile to ease the day for a grieving parent, then we have all done our job.
Merry Christmas from The Gift of Life!
Thank you to Bruce Reynolds, videographer for The Gift of Life Christmas Bear Delivery. Thank you to Jackie Pettit, mother of a premature baby who is now an adult, she dedicates her time to always preparing and delivering the Christmas hats and bears.
Contact The Gift of Life today to get involved in our knitters/crochet Facebook group who make the hats and bears all year round.
